SMArtCAREFollow-up observation and therapy evaluation in spinal muscular atrophy

Contact and Support

Project Lead

Prof. Dr. Janbernd Kirschner
Project Lead

University Hospital Freiburg i.Br.
Children and Adolescent Clinic (KJK)
Clinic for Neuropediatrics and Muscular Diseases
Breisacher Str. 62
79106 Freiburg i.Br.

Project Lead Freiburg

PD Dr. Astrid Pechmann
Project Lead Freiburg

University Hospital Freiburg i.Br.
Children and Adolescent Clinic (KJK)
Clinic for Neuropediatrics and Muscular Diseases
Breisacher Str. 62
79106 Freiburg i.Br.

Project Management

Dr. Katharina Dörnbrack
Project Management

University Hospital Freiburg i.Br.
Children and Adolescent Clinic (KJK)
Clinic for Neuropediatrics and Muscular Diseases
Breisacher Str. 62
79106 Freiburg i.Br.

+49 761 270-43521

E-Mail

Project Managment

Dr. Alexandra Giese

Project Management

University Hospital Freiburg i.Br.
Children and Adolescent Clinic (KJK)
Clinic for Neuropediatrics and Muscular Diseases
Breisacher Str. 62
79106 Freiburg i.Br.

E-Mail

Project Assistance

Christine Mauz
Project Assistance

University Hospital Freiburg i.Br.
Children and Adolescent Clinic (KJK)
Clinic for Neuropediatrics and Muscular Diseases
Breisacher Str. 62
79106 Freiburg i.Br.

E-Mail

Adrian Tassoni
IT

University Hospital Freiburg i.Br.
Centre for Clinical Trials
Elsässer Str. 2
79106 Freiburg i.Br.

E-Mail

Data Management

Franziska Wenzel
Data Management

University Hospital Freiburg i.Br.
Centre for Clinical Trials
Berliner Allee 6
79106 Freiburg i.Br.

E-Mail

Data Management

Dr. Tim Kampowski
Data Management

University Hospital Freiburg i.Br.
Children and Adolescent Clinic (KJK)
Clinic for Neuropediatrics and Muscular Diseases
Breisacher Str. 62
79106 Freiburg i.Br.

E-Mail

Data Management

Sven Seilnacht
Data Management

University Hospital Freiburg i.Br.
Centre for CLinical Trials
Elsässer Str. 2
79106 Freiburg i.Br.

E-Mail

Data Management

Lukas Nalbach
Data Management

University Hospital Freiburg i.Br.
Centre for CLinical Trials
Elsässer Str. 2
79106 Freiburg i.Br.

E-Mail

Physiotherapy

Sabine Stein
Physiotherapy

University Hospital Freiburg i.Br.
Children and Adolescent Clinic (KJK)
Clinic for Neuropediatrics and Muscular Diseases
Breisacher Str. 62
79106 Freiburg i.Br.

E-Mail

Physiotherapy

Sibylle Vogt
Physiotherapy

University Hospital Freiburg i.Br.
Children and Adolescent Clinic (KJK)
Clinic for Neuropediatrics and Muscular Diseases
Breisacher Str. 62
79106 Freiburg i.Br.

E-Mail

SUPPORT

If you have any questions about data entry or technical problems with the system, please fill out the following report form or call +49-761-270-43211.

Thank you very much!