Centrum für Chronische Immundefizienz - CCI

APDS Registry

The APDS registry is an ESID Registry level 3 project, collecting data of patients with the combined immunodeficiency Activated PI3-Kinase Delta Syndrome (APDS).

Information on the first steps is provided on the ESID website:

Link for APDS online documentation

https://cci-esid-reg.uniklinik-freiburg.de/EERS/login/auth

For L O G I N please see below "Benutzeranmeldung" --->

This APDS specific website provides passwort-secured access to all documents needed. To obtain username and password please mail to annette.uhlmann@uniklinik-freiburg.de

Lead investigators

Anita Chandra, Cambridge, UK

ac10018@cam.ac.uk

Stephan Ehl, Freiburg, Germany

stephan.ehl@uniklinik-freiburg.de

Sven Kracker, Paris, France

sven.kracker@inserm.fr

APDS - Registry

Total number of patients registered: 236

Registration still open.

STUDY DOCUMENTS FOR PATIENT INCLUSION

Information on username and password for study documents

annette.uhlmann
@uniklinik-freiburg.de

esid-registry@uniklinik-freiburg.de

Cooperation & Funding

The Medical Center - University of Freiburg - Center for Chronic Immonodeficiency (CCI) is member of the European Reference Network for Primary Immonodeficiencies, Autoinflammatory Disorders, Autoimmune Diseases, Paediatric Rheumatic Diseases (ERN RITA). In this context it cooperates with other members from different states in carrying out this study.

Further cooperation and funding partners